Recognising the expertise of people with disability

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Shane Clifton

This blog post is based on the Evidence & Policy article, ‘Disability lived experience and expertise: recognising the expert contributions of people with disability’.

The disability rights movement was founded on the principle of ‘Nothing About Us Without Us’. This idea highlights the importance of including people with disability in decisions that affect them and recognises their expertise in shaping their own lives. While people with disability have too often been subject to controlling and dehumanising systems, as we explore in our recent study, there is now a growing understanding that disabled people should play key roles in designing, producing and leading disability healthcare, policy and research. The knowledge they bring is often called ‘lived experience’.

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Beyond barriers: new insights from the ESRC Policy Fellowships

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Matthew Flinders and Jessica Benson-Egglenton

This blog post is based on the Evidence & Policy article, ‘Understanding the dynamics of research–policy fellowships: an evaluative analysis of barriers and blockages’.

Supporting embedded academics requires understanding role types, managing ‘bandwidth,’ and setting clear expectations.

In recent years the dominant notion of ‘research excellence’ has expanded to include a joint emphasis on both knowledge creation and knowledge utilisation. Research funding is now targeted as addressing specific societal challenges. Forms of co-production and co-design have been promoted as a way of bringing potential research-users into project design and delivery. Thus, a vast and complex landscape of boundary-spanning initiatives and investments has been established to facilitate the use of research by policy-makers.

The challenge, however, is that policy-making is a messy and sometimes irrational process. Brian Hogwood and Lewis Gunn famously exposed this simple fact in their book Policy Analysis for the Realworld (1985), and recent work from the Institute for Government underlines the continuing validity of ‘the real-world messiness’ argument.

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New Evidence & Policy issue – Volume 21: Issue 3

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The editorial team of Evidence & Policy are excited to share this special collection of articles focused on the intersections between health, evidence use, and the application of research within evolving and complex public health policy contexts.

Articles in this issue explore and critically examine innovative models and frameworks (i.e., Functional Dialogue, Policy Advisory Boards) for leveraging research to inform policy in times of public health crisis (specifically, the COVID-19 pandemic). They also focus on improving medical practice (i.e., Knowledge Brokering, Contemporary Implementation of Traditional knowledge and Evidence (CITE) Framework, Integrated Systems of Care), as well as efforts to expand and broaden health care coverage and directly influence policy addressing structural determinants of health (Participatory Deliberative Processes).

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What it really takes to mobilise knowledge: lessons from Danish street-level organisations

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Dorte Caswell and Tanja Dall

This blog post is based on the Evidence & Policy article, ‘Structuring sustainable knowledge brokering in street-level organisations‘.

Let’s face it: everyone loves the idea of evidence-informed practice – until it’s time to actually do it. In our Evidence & Policy article, we dive into the messy, fascinating, and occasionally bureaucratically baffling world of knowledge mobilisation in public service organisations. Spoiler alert: there’s no magic wand, but there are some pretty good pointers on how to make the hard work of knowledge mobilisation work.

Our study  is based on a long-term collaboration with five Danish municipal employment services. These organisations juggle national policies, performance targets, and the unpredictable realities of human lives. Within this whirlwind, we asked: how can research and evidence become part of daily practice, rather than something that only shows up in PowerPoint presentations?

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Researchers need training and support to effectively engage with policymakers

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Kaitlin Brand, Shelby Flores-Thorpe, Yuzi Zhang, Amelia Roebuck, Tiffni Menendez, Rachel Linton, Taylor Bishop Scott, Max Crowley, Alexandra van den Berg and Deanna M. Hoelscher

This blog post is based on the Evidence & Policy article, ‘Evaluation of researchers’ policy-related knowledge, needs and self-efficacy before and after the 2021 Texas Legislative Session’.

Evidence-based health policy has long shaped public health intervention in the United States. For example, smoke-free policies, first introduced in the 1970s, prevent exposure to second-hand smoke, and folic acid fortification of grain products in the late 1990s significantly reduced rates of spina bifida and neural tube defects in newborns.  

Despite these successes, there’s still a considerable delay in the knowledge transfer of research to policy and practice. Many public health researchers want their work to inform health policy but face barriers to engagement with policymakers, such as different communication styles, decision-making frameworks, and timelines. Developing ongoing relationships and partnerships between researchers and decision-makers offers one solution as multiple studies suggest policymakers are more likely to use evidence to inform health policy when it comes from someone they know or respect. 

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Bridging disciplinary silos: a URE methods repository to aid collaboration

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Sallie Barnes, Annette Boaz and Kathryn Oliver

There are two critical problems facing the use of research evidence (or URE) space. The first is the limited opportunity to learn about how other disciplines are researching URE. The second is the lack of open and interdisciplinary debate about what counts as good quality research in the field. The URE Methods Repository seeks to address these problems. By providing improved access to published papers, data, analysis tools, and preprints, the repository aims to promote more connected, innovative practice and help us to avoid reinventing the wheel.

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The challenge of sowing seeds of academic-policy engagement

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Petra Mäkelä, Annette Boaz and Kathryn Oliver

This blog post is based on the Evidence & Policy article, ‘The Capabilities in Academic Policy Engagement (CAPE) programme in England: a mixed methods evaluation’.

“[M]ore is not the moral equivalent of better.”
– Weiss 1979, p. 456

Ambitions for evidence-informed policymaking have led to a rise in knowledge-brokering initiatives between researcher and policy communities, propelling the development of a ‘rudderless mass’ of engagement activities. For researchers or policy professionals without pre-existing contacts or networks for academic-policy engagement, it can be difficult to know where to start. 

In our Evidence and Policy article, we report on a mixed methods evaluation of a programme known as Capabilities in Academic Policy Engagement (CAPE). CAPE operated as an academically-driven model, which generated an increase in engagement activities reacting to policy opportunities. Our article adds to the limited work that has empirically tested strategies for academic-policy engagement and their facilitation, to provide insights into their qualities and challenges.

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Learning through comparison

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Katherine Smith, Niklas Andreas Andersen and Valérie Pattyn

This blog post is based on the Evidence & Policy Special Themed Section ‘Learning Through Comparison’, Published in Evidence & Policy Vol 21 No 2, May 2025.

One of the central aspects of any process of learning and knowledge generation is the act of comparison. By comparing how our own ideas, norms and actions align or differ with those of others, we can see ourselves in a new light and thus better understand the particularities of our own situation as well as potentially re-evaluate taken-for-granted assumptions. This is true of every-day examples of individual learning as well as learning within and across research-communities. However, learning through comparison is also an inherently difficult endeavour as it often entails acquiring in-depth knowledge of research areas or settings that are (at least initially) completely foreign to us. This is perhaps one of the reasons why many fields of research often struggle to produce truly comparative research.

This is indeed the case with the now extensive research exploring, and trying to strengthen, the use of evidence in policy and practice. Single case studies and analyses of specific policy domains, countries or jurisdictions dominate this literature, limiting our ability to understand and compare how evidence, and evidence-for-policy mechanisms, function across time, and distinct institutional, national, and disciplinary contexts. The consequence is, we suggest, that we’re likely to be missing opportunities for cumulative knowledge building (in research) and lesson drawing (in practice).

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Why may evidence-based policies fail to improve policy performance – and what can be done about it?

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Jesper Dahl Kelstrup, Jonas Videbæk Jørgensen and Magnus Paulsen Hansen

This blog post is based on the Evidence & Policy article, ‘The disenchanted fairy godmother: comparing how and why evidence-based management and public service professionals influenced policy performance in public school and active labour market policy in Denmark’.

Almost two decades ago Carol H. Weiss and co-authors described the idea of evidence-based policies as a ’fairy godmother’ with ’some warts’. In other words, although evidence-based policies clearly entailed some challenges and drawbacks, like discounting local professional judgement, it was still worth pursuing to ’increase the rationality of decision-making’, as they put it.

Yet, studies of evidence-based policy making in action in the past decades have shown that although the aspiration to use evidence to enhance the legitimacy and effectiveness of policies is still widely shared, it often falls short. A common explanation for failure is the presence of various barriers. In our Evidence & Policy article, we critically revisit Weiss and her co-authors’ argument to question whether the challenges related to evidence-based policy making are in fact simply ’warts’ that can be removed, or are more fundamental challenges associated with the aims and management of evidence-based policy making in different policy areas.

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Excellence in practice-based research: beyond academia and into action

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Ulrica von Thiele Schwarz, Håkan Uvhagen, Åsa Hedberg Rundgren and Emma Hedberg Rundgren

This blog post is based on the Evidence & Policy article, ‘When academic impact is not enough: a concept mapping study characterising excellence in practice-based research’.

What makes research truly excellent? In practice-based research, success is not just about advancing academic knowledge but also driving tangible societal change. It is research designed not just to discover but to act.

Traditional definitions of research excellence emphasise the innovation and rigour of scientific methods, while usefulness and practical applicability are less often emphasised. Currently, researchers are being asked to engage in practice-based research, working together with people outside academia to address societal challenges. However, their performance is still largely evaluated based on criteria reflecting a more traditional type of research. So, what happens if we combine the words excellence and practice-based research to ask: what is excellence in practice-based research? That is what we explored in our study where we engaged professionals working in Research & Development units in social services in Sweden, thus with one foot in academia and one in practice, in a brainstorming and sorting exercise to answer that question. The data was analyzed statistically to identify common patterns in the data, resulting in a visualisation of the key characteristics of excellent practice-based research and how they are interconnected.

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